Chemotherapy Chaos
Had an extra week off since I switched my Chemotherapy from Monday back to Friday. I was feeling really good with that extra time without those horrible drugs in my system. The weekend before I had made the decision to stop fighting the hair loss situation and shaved my head completely. I think I look better completely bald than the spotty thin hair that I had. You be the judge, but I think I pull it off.
Spent Thursday night February 6th with Julia her car was in the shop so she was going to drop me off for Chemo and use my car till we could pick her car up. Friday morning Julia dropped me off and I went up to the 3rd floor Chemotherapy room as usual while she took my car to work.
Everything started normally, my parents met me in the waiting room while I checked in. I was a little early and there was one other patient in that had the same appointment time, but the room was packed. As usual that means that there is going to be a wait till they can get me back into the infusion room, kind of stressful which doesn't help the fact that they always question me because my blood pressure is high, (Hello get me pain meds that work!). I took an Ativan to help me calm down and get my blood pressure under control at least a little bit.
I finally got back into the room after 11:00 and started my injections. They began as usual with the magnesium, no problems at all with that. Gemzar went next and they were able to get that at a faster pace than the normal 45 minutes (that would help to make up for the hour and a half wait to get started!)
The nurse then hooked up the Cisplatin. The nurse verified the drug and hooked it up to the IV, a second nurse verified the prescription and signed off on the computer and both walked away. Within a few minutes of the nurse walking away I started to feel a slight tingling and burning in my face. I flagged down one of the nurses working on another patient. She took one look at me and dropped what she was doing and called the other nurses over to me. :-(
The nurses immediately called the doctor on duty to come over and look at me. By that time not only was my face on fire but the right side of my body as well as my throat. It was weird that the right side was feeling it since the IV was in my left arm, but who knows how the body sends the drugs around. I noticed my fingers were swelling, and kind of subconsciously noticed that it was harder for me to see. The doctor ordered the Cisplatin to be disconnected and ordered a dose of Benadryl to be added to my IV. She also told them to add another anti-histamine to be injected.
By this time I'm having trouble breathing because the inside of my mouth is swelling and my throat is tightening. I know I'm obviously having an allergic reaction, but it's weird that this was the 10th time I had received the drug that I was having this reaction to it. The nurses started monitoring my blood Oxygen levels and immediately hooked me up to the Oxygen tank. I'm freaking out now and the nurses are asking about getting the intubation kit ready and if they might need it. I'm feeling extremely scared now, it's hard for me to breathe because my throat is still swollen and I'm having trouble seeing because my eyes are swelling up. I tried to take a selfie to but my swollen fingers couldn't press the button on my phone, I did see the picture though and my face looked like Rocky's as swollen as it was.
After about 5 minutes the doctor ordered another anti-histamine and another round of Benadryl. A minute into that the pressure on my throat started to lessen and I felt the swelling of my eyelids slacken a bit. The burning was decreasing and all around I was beginning to feel better. Dr. Dhuong came by and replaced the other doctor and told me the obvious that I had an allergic reaction to the Cisplatin. He was going to take that drug off of my regimen and just continue with the Gemzar going forward and monitor the tumor markers in my blood work to make sure things are staying stable before making a decision to re-add a second drug or change the strategy all together. The swelling in my face was still bad so he added one more Benadryl order and left me in the capable hands of the nursing staff.
15 minutes later I was 100% back to normal other that the fact that all the Benadryl had me sleepy as hell, it was a good thing that I wasn't driving with all those drugs in my system. Because I wasn't doing the Cisplatin, they didn't need to give me the additional bag for hydration I was free to go. The nurse took out my IV and my parents helped me out to there car. My parents dropped me off at my apartment and for the most part I slept the rest of the day. Glad that I thought to alert the nurse when I did, I don't want to think about what would have happened if I had let more of the Cisplatin get into my system.
Spent Thursday night February 6th with Julia her car was in the shop so she was going to drop me off for Chemo and use my car till we could pick her car up. Friday morning Julia dropped me off and I went up to the 3rd floor Chemotherapy room as usual while she took my car to work.
Everything started normally, my parents met me in the waiting room while I checked in. I was a little early and there was one other patient in that had the same appointment time, but the room was packed. As usual that means that there is going to be a wait till they can get me back into the infusion room, kind of stressful which doesn't help the fact that they always question me because my blood pressure is high, (Hello get me pain meds that work!). I took an Ativan to help me calm down and get my blood pressure under control at least a little bit.
I finally got back into the room after 11:00 and started my injections. They began as usual with the magnesium, no problems at all with that. Gemzar went next and they were able to get that at a faster pace than the normal 45 minutes (that would help to make up for the hour and a half wait to get started!)
The nurse then hooked up the Cisplatin. The nurse verified the drug and hooked it up to the IV, a second nurse verified the prescription and signed off on the computer and both walked away. Within a few minutes of the nurse walking away I started to feel a slight tingling and burning in my face. I flagged down one of the nurses working on another patient. She took one look at me and dropped what she was doing and called the other nurses over to me. :-(
The nurses immediately called the doctor on duty to come over and look at me. By that time not only was my face on fire but the right side of my body as well as my throat. It was weird that the right side was feeling it since the IV was in my left arm, but who knows how the body sends the drugs around. I noticed my fingers were swelling, and kind of subconsciously noticed that it was harder for me to see. The doctor ordered the Cisplatin to be disconnected and ordered a dose of Benadryl to be added to my IV. She also told them to add another anti-histamine to be injected.
By this time I'm having trouble breathing because the inside of my mouth is swelling and my throat is tightening. I know I'm obviously having an allergic reaction, but it's weird that this was the 10th time I had received the drug that I was having this reaction to it. The nurses started monitoring my blood Oxygen levels and immediately hooked me up to the Oxygen tank. I'm freaking out now and the nurses are asking about getting the intubation kit ready and if they might need it. I'm feeling extremely scared now, it's hard for me to breathe because my throat is still swollen and I'm having trouble seeing because my eyes are swelling up. I tried to take a selfie to but my swollen fingers couldn't press the button on my phone, I did see the picture though and my face looked like Rocky's as swollen as it was.
After about 5 minutes the doctor ordered another anti-histamine and another round of Benadryl. A minute into that the pressure on my throat started to lessen and I felt the swelling of my eyelids slacken a bit. The burning was decreasing and all around I was beginning to feel better. Dr. Dhuong came by and replaced the other doctor and told me the obvious that I had an allergic reaction to the Cisplatin. He was going to take that drug off of my regimen and just continue with the Gemzar going forward and monitor the tumor markers in my blood work to make sure things are staying stable before making a decision to re-add a second drug or change the strategy all together. The swelling in my face was still bad so he added one more Benadryl order and left me in the capable hands of the nursing staff.
15 minutes later I was 100% back to normal other that the fact that all the Benadryl had me sleepy as hell, it was a good thing that I wasn't driving with all those drugs in my system. Because I wasn't doing the Cisplatin, they didn't need to give me the additional bag for hydration I was free to go. The nurse took out my IV and my parents helped me out to there car. My parents dropped me off at my apartment and for the most part I slept the rest of the day. Glad that I thought to alert the nurse when I did, I don't want to think about what would have happened if I had let more of the Cisplatin get into my system.
